ASFL's Mission
The mission of the A Song for Life Sarcoidosis Foundation and its online Network is to bring people of the Sarcoidosis Community together as one voice to help raise the volume on the need for more public awareness, education, research and support services that will help meet the day to day needs of Sarcoidosis Sufferers and their Families.
Through awareness efforts, education, events and virtual online outreach ASFL seeks to position itself as a gateway to effective support, tangible resources and reliable information about natural medicine alternatives to disease management and non-toxic lifestyle options that create healthier living environments for people living with Sarcoidosis.
ASFL's Vision
The vision for the A Song of Life Sarcoidosis Foundation is to become an international catalyst that bridges the gap between Patient’s daily experience living with Sarcoidosis and Doctors technical knowledge of the disease. By highlighting the “real life” perspective of Sufferers and providing information about alternative medicine options we hope to help Medical Professionals gain a broader perspective on how to effectively approach disease management that will better serve the Sarcoidosis Community at large.
The Founder's Story
After many, many months of suffering with reoccurring sinusitis infections, chest pain caused by a chronic dry cough, shortness of breath, aching joints and debilitating fatigue that led to a battery of lab work, chest x-rays, CT scans and several trips to various specialists, on May 17, 2006 after undergoing a Mediastinoscopy with a Biopsy, life as I knew it had changed forever . . . I was “officially” diagnosed and permanently “branded” with this mysterious and erratic disease known as Sarcoidosis! Despite the unpredictability of living with Sarcoidosis and the struggle I had to find answers and support my determination to fight past these obstacles prevailed, motivating me to want to do more by creating the “A Song for Life Sarcoidosis Foundation”.
Through "ASFL" it is my personal desire to provide tangible patient support, resources and raise awareness. I hope to inspire Patients as well as Families of Sufferers to share their personal journeys living with Sarcoidosis and to encourage the exploration of natural alternative treatment options that may provide less toxic but possibly more effective disease management. As a Sarcoidosis Survivor and Founder of this organization I am committed to standing with other Sarcoidosis Survivors & Advocates shoulder to shoulder in faith to fight toward finding a cause and a cure!
If you or someone you know suffers from Sarcoidosis please Speak Out . . .
An active voice is more effective than silent suffering!
~ Jaz Owens, Founder & Sarcoid Suffer
